mrissa: (tiredy)
[personal profile] mrissa
I was talking online with one of my friends last night and made an offhand remark about how Ista is staying with my mom right now, allowing me to avoid bending to take care of the dog in multiple ways and going up and down the stairs to deal with her in multiple other ways and, y'know, walking her. Stuff like that. Since the bad vertigo has continued for the last twelve days and [livejournal.com profile] timprov has some limitations as well and [livejournal.com profile] markgritter is out of town. And my friend said that that was good to hear, since the stairs were the thing he was most worried about for me right now.

And I thought, oh. Crud. I have been so busy coping that I have not let some of the people who are concerned about me know about the methods of cope. So. Stuff You Should Not Worry About:

The Stairs. I am climbing the interior stairs of our house on all fours and going down them on my butt like a little kid. With the doglet staying with Mom for now, I can concentrate much larger chunks of time on one floor or the other and minimize the time spent on the stairs. This is not a perfect solution; among other things, it limits what I can carry upstairs. So mostly I am not carrying things upstairs. I make [livejournal.com profile] timprov do it, or I decide that it can stay downstairs for the moment.

The Driveway. I am not going on the driveway. There. Problem solved. We have a driveway service, but apparently last night's snowfall was just under two inches. However, we can call them, call a friend, or have [livejournal.com profile] timprov shovel just enough tracks for the car to get in and out if he's feeling good enough. My mom shoveled the steps and the walk, so we don't need to worry about that part.

Driving. I'm not, until I'm less dizzy than I have been lately. I am also minimizing rides in the car when I can, because they don't help, but I can manage them when I need to.

Cooking. I'm avoiding sharp or hot objects. We have a bunch of stuff in the freezer and the fridge and the pantry that I can eat cold or put in the microwave, and I also have people who are willing and able to cook or fetch me food. Yesterday [livejournal.com profile] timprov took care of my breakfast and lunch and my mom took care of my breakfast and dinner. (I ate breakfast in two shifts, a banana and milk to tide me and the rest with my grandparents before they went home this morning.) With [livejournal.com profile] timprov and Mom and [livejournal.com profile] ladysea, and with all the stuff we have in tupperware for my convenience -- or stuff that doesn't require tupperware, like bananas! -- it's fine.

The shower. The shower I use is a stand-up shower, so no worries about climbing over the rim of the tub. It is also very very small. Very. I have whacked my shoulder on the soap dish more times than I can count, and I have run into the walls a lot, but it would take a contortionist of great genius to be able to fall over in that shower without losing consciousness, and the vertigo does not make me lose consciousness. I know that the people who love me would prefer that I not whack my shoulder on the stupid soap dish, and I have to say I'm with you on that, but it's a lot different level of worry than the fear some people might have that I will fall and hit my head in the shower. Really, that is just not plausible with this particular problem. If it was fainting, you could worry. It's not.

Exercise, either getting of or lack of. The stationary bike has handles. It is extremely sturdy. We bought it when [livejournal.com profile] timprov was at his unsteadiest, so it is designed for someone more than twice my size to be able to tip and wobble and not fall. Also I am no longer in the trial-and-error stage with yoga and Pilates: I know which things may be unsteady configurations of a [livejournal.com profile] mrissa, and I don't do them. Mat work only. So I'm not going crazy with the fidgets from not getting any exercise, and I'm not going into deconditioning worries, but I'm also not doing anything that could injure me through vertiginous means. (Obviously anybody can always pull something or strain something or whatever. We all try not.)

General getting around the house. This is where I am likeliest to have a fall or near-fall, but since it is my own house, I know where all the handholds are, and I know where a handhold is doubling for a bit of self-protection. (Example: I steady myself walking through the kitchen by wrapping my hand over the corner of the overhead cabinets. Then I not only have something to stabilize against, I make sure that I know where the corner is and that it's not going to smack me in the head any time soon.) There is nearly always a way to get from here to there while hanging onto something, so that's what I do, even if it takes longer. I have said a few times that I feel like a monkey going from branch to branch, or like someone in zero-g, but part of what that means is that I've gotten pretty darn good at it.

General getting around other places. I am not doing this without someone's arm. I'm generally not doing much of it at all. The sole exception to the someone's-arm rule is that I know the main floor of my parents' house pretty well and have a fair notion of where the handholds and hazards are there, too, so I don't need my mom to walk me to the bathroom from her kitchen table. (She would. But she doesn't have to.) This is pretty tiring for myself and the person whose arm it is, but it works all right for now.

So. I see the doctor again next week, and she will almost certainly set up PT after that. The last 12 days have been worse than the days before them, but there's no particular reason to think that that will continue until/unless the PT is effective, or that it won't. We just don't know. The whole thing -- I am telling you in case you need to hear, but I suspect you've guessed by now -- is frustrating. I am still able to get some fiction written, and that's extremely important to me. I wouldn't call the adjustments I've talked about here anything like self-sufficiency, but I'm keeping what I can of that without taking unnecessary risks. The people closest to me have been good at recognizing my need to still do stuff without necessarily having it be the stuff that's not safe at the moment.

Most of this, as you can probably tell, is not a long-term solution. We're hoping that it doesn't have to be, and the new vertigo clinic seems to agree that this is a reasonable hope. They're not always the most graceful and elegant work-arounds, but they work well enough that you shouldn't worry about any melodramatic images of me lying in a pool of my own blood somewhere.

Date: 2008-02-05 04:19 pm (UTC)
From: [identity profile] snurri.livejournal.com
I had not realized how difficult things are for you right now. I hope they find a way to improve your situation, and quickly.

Date: 2008-02-05 07:30 pm (UTC)
From: [identity profile] mrissa.livejournal.com
And you gave me a Mac icon! That'll cheer anybody up.

Date: 2008-02-05 04:20 pm (UTC)
From: [identity profile] columbina.livejournal.com
Oh my word.

Well, yes, I am reassured to know that you have A Methodology. I am the opposite of reassured to learn that this much Methodology has become necessary, if you get me.

I am thinking the good thoughts. Redoubled.

Date: 2008-02-05 04:25 pm (UTC)
ckd: (sharky tng)
From: [personal profile] ckd
My sentiments exactly. Having cope, good; needing cope, not so good. (This seems a fairly general truism applicable to many situations.)

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Date: 2008-02-05 04:40 pm (UTC)
From: [identity profile] mamapduck.livejournal.com
Someday when you could use a giggle ask me about how I have dealt with agoraphobia in the past. Some of it is pretty funny.

Date: 2008-02-05 07:31 pm (UTC)
From: [identity profile] mrissa.livejournal.com
I feel very sorry for people who can't find their own issues funny from time to time.

Date: 2008-02-05 04:44 pm (UTC)
From: [identity profile] zwol.livejournal.com
I hadn't realized how difficult things are for you, either. I hope the physical therapies work out.

Pace earlier thread about expressions of sympathy, I can't come over and make tea, but would you like a handmade candle?

Date: 2008-02-05 07:32 pm (UTC)
From: [identity profile] mrissa.livejournal.com
It seems like a rude question to ask when someone is offering to give me something, but is it scented? I'm pretty scent-focused, so I prefer not to have scented candles etc. in my house when possible. Otherwise it sounds very nice of you.

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Date: 2008-02-05 04:46 pm (UTC)
ext_4917: (Default)
From: [identity profile] hobbitblue.livejournal.com
Holy - ok, I hadn't realised things were that bad. And yes, yay for methods of cope (and I've used/still use some of those methods myself and going downstairs on one's butt is seriously tiring..) but short-term is definitely the key, finding ways to keep on living and keep on going are great but I hope you're going to tell the doctor this is what you do to function. At which point she will eep a lot and start scampering a whole lot faster, I suspect. I assume you keep your cellphone or some other means of summoning help close to hand? When I was really bad we had a system of wireless doorbells as "panic buttons" in various rooms, I've heard some people use baby monitors etc.

Sending good thoughts and healing vibes

Date: 2008-02-05 07:33 pm (UTC)
From: [identity profile] mrissa.livejournal.com
I've told the doctor this is what's going on, and she's lining things up for me even as we speak. She is a very smart doctor and very determined.

And yes, the cellphone is charged and on my person when no one else is awake in the house. The way our house is laid out makes it fairly easy to summon help if someone else is home and awake.

Date: 2008-02-05 04:50 pm (UTC)
From: [identity profile] papersky.livejournal.com
Yeef. What [livejournal.com profile] ckd said on the cope bit.

Is there anything I could send that you might want? How about some cold chocolate? Or some hot chocolate that isn't p/o/i/s/o/n/ed full of peppers?

Should I organize everyone I know in Minneapolis to bring you dinner every day for the next month? I think I know enough people in Minneapolis. And I know how to do it, too. I would say on my LJ, "Who is in Minneapolis and would do me a favour?" And then I could say to everyone who replies, "Could you take Mris's family some hot dinner on x day, because she is falling-over-y?" I know you could do this yourself, but I might know a few different people, or it might be easier for me to ask than you.

I would send dinner myself, but it's too far and it would get cold.

Date: 2008-02-05 07:41 pm (UTC)
From: [identity profile] mrissa.livejournal.com
It would get cold. Or cold and then warm and then cold and then warm, and that's worse.

Really I wasn't meaning to solicit sympathy with this post. A friend was worried, and I didn't fully process that he was worried because he is not just a close friend but a local close friend and thus had watched me wobble attempting to put my shoes on to leave his birthday party. I don't want to be ungracious about anything anyone chooses to do or bring or send or make. But we're really doing just fine; certainly you should wait until someone has a real crisis to call out the troops.

Date: 2008-02-05 04:59 pm (UTC)
loup_noir: (Default)
From: [personal profile] loup_noir
Most people would go to pieces; you develop a methodology. And keep on with your exercise and writing and family and life. Inspirational. Really.

Date: 2008-02-05 05:09 pm (UTC)
From: [identity profile] miz-hatbox.livejournal.com
I was thinking the same thing. (and...Pilates! yay!)

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Date: 2008-02-05 05:37 pm (UTC)
From: [identity profile] akitrom.livejournal.com
...you shouldn't worry about any melodramatic images of me lying in a pool of my own blood somewhere.


Should we take solace in the more-reassuring image of you lying in a pool of someone else's blood??

Date: 2008-02-05 06:29 pm (UTC)
From: [identity profile] timprov.livejournal.com
We have a Deal. She is not allowed to use her axe until her balance is restored.

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Date: 2008-02-05 05:58 pm (UTC)
From: [identity profile] athenais.livejournal.com
I thought of you frequently yesterday, though not worrying about your health, as Aubrey's invariable diminution of Mistress (in his Brief Lives) is Mris.

Date: 2008-02-05 07:50 pm (UTC)
From: [identity profile] mrissa.livejournal.com
That's a much better reason to think of me. I think.

Date: 2008-02-05 06:24 pm (UTC)
From: [identity profile] profrobert.livejournal.com
Add me to the list of your friends who are sorry you're going through this, but are proud of you for working so hard against it.

If this is a stupid idea, ignore it and chalk it up to my well meaning ignorance of vertigo workarounds and a desire to not feel impotent in its face, but have you thought of putting on all the protective gear skateboarders wear -- helmet, knee pads, elbow pads, etc.? I realize dressing you up like the Michelin Man or Mike Strahan would be going too far, but if there's a spot you regularly hit on the way down, then maybe there's some padding that would not be too obtrusive?

Date: 2008-02-05 07:52 pm (UTC)
From: [identity profile] mrissa.livejournal.com
I've thought about it, but at this point the falls would continue to jostle and jar and none of the joints have been in particular danger. The worst thing is really that my shoulders get tired and unhappy from catching myself. If things change later, we'll adjust.

Date: 2008-02-05 06:29 pm (UTC)
From: [identity profile] mechaieh.livejournal.com
I had indeed been quietly-worrying-but-not-wanting-to-intrude/impose, and I am one of those reassured by specifics. So I very much appreciate the list, and here's hoping for much less frustration and more time for working rather than working-around soonest.

Date: 2008-02-05 07:52 pm (UTC)
From: [identity profile] mrissa.livejournal.com
I'm glad this entry served its intended purpose for at least one person, then!

Date: 2008-02-05 06:30 pm (UTC)
jenett: Big and Little Dipper constellations on a blue watercolor background (Default)
From: [personal profile] jenett
I much appreciate the list of stuff not to worry about. It is (and you will know, but other people might not) extremely helpful. (Because, lo, I worry.)

Along with [livejournal.com profile] papersky's comment, if are things like errand running or suchlike - my schedule is somewhat complex (when isn't it?) but slowly improving, and if my coming over at some point and being of service in various ways would be of help, I am glad to do it.

(You may get my references for doing so from Elise, most obviously. But seriously. I am as happy to do dishes as to run people to the pharmacy as to show up bearing easily edible and storable food. But I do not wish to make a bother of myself either, so knowing what's welcome is handy.)

Date: 2008-02-05 07:53 pm (UTC)
From: [identity profile] mrissa.livejournal.com
Glad to have assuaged some of the worry. We are really generally doing well with errands and chores and stuff, but I will not hesitate to poke you if there's something I'd appreciate your help with.

Date: 2008-02-05 07:14 pm (UTC)
From: [identity profile] arielstarshadow.livejournal.com
Holy crap and Jumpin' Jehosophat. I remember my bout with vertigo years ago, and it was nowhere near that bad, and it drove me crazy.

Here's hoping this new clinic and the PT will get things FIXED, and soon!

Date: 2008-02-05 07:53 pm (UTC)
From: [identity profile] mrissa.livejournal.com
Thanks for the good wishes.

Date: 2008-02-05 07:19 pm (UTC)
From: [identity profile] mightyjesse.livejournal.com
I was/am a bit worried about you, but more about your frustration levels, since you like to be a busy M'ris, and I know this has to be cutting into your productivity levels. I knew that you'd continue doing, despite your body's attempt to complicate the issue, for you are a determined M'ris.

Date: 2008-02-05 07:54 pm (UTC)
From: [identity profile] mrissa.livejournal.com
Yah, my friends and family all seem to be fairly clear that I will keep doing and more worried about what I will do to myself in the process of doing.

The frustration ebbs and flows. Today is a good day, so you get a post.

Date: 2008-02-05 07:33 pm (UTC)
From: [identity profile] orbitalmechanic.livejournal.com
I just found myself typing, "My goodness, that totally fucking sucks!" which I believe is a freak hybrid of your dialect and mine.

Date: 2008-02-05 07:55 pm (UTC)
From: [identity profile] mrissa.livejournal.com
Heh. Yes. Boston meets Minneapolis rather forcibly in the middle there. Poor "that," intermediary between strange partners!

Date: 2008-02-05 08:08 pm (UTC)
From: [identity profile] mackatlaw.livejournal.com
Yoga and Pilates are nicely adjustable that way. I'm glad you are still doing them, even if only mat work. It keeps the muscles in shape and the organs healthy, I believe. Pilates, especially, has lots and lots of mat work options. If it's worked so far, keep on that regimen! (Advice I need to give myself, too, now that my gym option has been taken away due to finances.)

Date: 2008-02-05 08:36 pm (UTC)
From: [identity profile] hbevert.livejournal.com
Here's hoping that your very bad two weeks will soon fade into some much better weeks. Way to be persistent in making systems that still allow you to leave the house, work, exercise and take care of personal care alone. It's reassuring to hear that you aren't even letting the really bad weeks defeat you. Best of luck with the new PT regimen.

Date: 2008-02-05 10:41 pm (UTC)
From: [identity profile] mrissa.livejournal.com
Persistence we got here. Thanks for the good wishes.

Date: 2008-02-05 09:27 pm (UTC)
From: [identity profile] eposia.livejournal.com
When trying to mentally walk a mile in your shoes on this vertigo thing, the analogy I came up with to try understanding it was moving in micro-gravity. It was neat to read you use that comparison here.

Date: 2008-02-05 10:40 pm (UTC)
From: [identity profile] mrissa.livejournal.com
Great minds etc.!

Date: 2008-02-05 10:11 pm (UTC)
From: [identity profile] dsgood.livejournal.com
Hoping things get better, reasonably fast. (Or even unreasonably fast.)

Date: 2008-02-05 10:41 pm (UTC)
From: [identity profile] mrissa.livejournal.com
I feel that we've passed the point where any speed would count as unreasonably fast, including sudden and total remission right now. So yah, I'm hoping, too. Thanks.

Date: 2008-02-06 12:09 pm (UTC)
From: [identity profile] talimena.livejournal.com
Thanks for the reassurance. I have great faith in PT and I really hope it helps for you.

Date: 2008-02-07 05:23 am (UTC)
From: [identity profile] logovore.livejournal.com
Strange but pleasant to say, the details makes it easier for me to feel for/with you, yet less needful to actually worry about you.

(Because, I suppose, the detail makes both the problem and the thoroughly-worked-over-ness of the problem more vivid.)

Not that you don't know, but of course you have my affectionate good wishes. These have no cash value at present, but I am reliably told they can be redeemed for a very nice volcano in Iceland in a few years' time. You did always want a nice volcano in Iceland, didn't you?

Date: 2008-02-07 04:35 pm (UTC)
From: [identity profile] mrissa.livejournal.com
I did. Yes. There is one thoughtfully illustrated on the map above my desk, so I will be able to gaze at it and think of what I will be able to afford in a few years' time!

Date: 2008-02-07 11:52 am (UTC)
From: [identity profile] one-undone.livejournal.com
I haven't been reading LJ for a while and didn't know you were dealing with the vertigo again. I'm really sorry to hear that.

It's amazing the adaptations we can make to our lives when we must. It's also frustrating to have to measure out your day in careful, shuffling steps and hand-over-hand, steadying tugs. I've done it only briefly with Meniere's, and that was annoying and nauseating enough. I do so feel for you there. :/

I've not heard of a vertigo clinic before. That sounds promising! :) I hope they are able to provide you with a solution to your dizziness. Please keep us posted.

Date: 2008-02-07 04:34 pm (UTC)
From: [identity profile] mrissa.livejournal.com
The clinic has audiologists, physical therapists, and doctors who have multiple concentrations in neurology and other related fields so that they can treat all sorts of balance issues in one clinic. So far it seems like a very good thing to me.

Date: 2008-02-22 02:42 pm (UTC)
From: [identity profile] atdt1991.livejournal.com
I scrolled back to see what's up, so I'd know what you were going to PT for, since I'm sorta new. ;)

Why can't you guys live in MI so I could shovel your driveway for you? I mean, the nerve.

Date: 2008-02-22 05:26 pm (UTC)
From: [identity profile] mrissa.livejournal.com
MI is more than an hour from Byerly's.

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