PT retest report again

[mrissa]

I am not done with Fourth Street commentary yet, I don't think. Probably not done, anyway. But today was my PT retest, so I thought I'd say some stuff that came up there:

1. I am still making steady progress. Yay, returning vestibular function. It's still less than a third of an average person's vestibular function, but we continue to see monotonic improvement. Am I thrilled about this? Yes. Definitely.

2. The steady progress is slow. It is very slow. I am way out on the edge of the bell curve on this one. What does this mean? Probably several more months of PT thrice daily. We've scheduled another six weeks plus retest at the end of it. It's not looking like that retest will be the last of my PT. It could be. It's just not the way to bet right now. Am I thrilled about this? No. Definitely not.

3. We have some guesses about the next few months, based on how all this is going. Guesses about timing for my 30th birthday party, and what travel I will and will not be able to do. (This is mostly "will not," one big "will" in the direction of Montreal: my physical therapist and my doctor consider it to be one of the milestones we're working towards.) This is not so much thrilled or unthrilled as practical and planny, which are good things in themselves.

4. I have passed Standing In The Corner 101. Go me! We're back to the realm of thrilled again.

5. What does this mean? Among other things, it means that what I'm doing now is doing what it's supposed to, and advice that is aimed at the idea that I am not making progress and need something drastically different is unlikely to thrill me. Supportive comments about what I'm working really hard at doing now are nice, though.

Comments

[shweta-narayan.livejournal.com]

Yay! That's wonderful, m'ris, even if it's slow and non-thrillingly tiresome. It's progress, and progress against teh sick is a great thing.

We have been worried about you down here.

[mrissa.livejournal.com]

We have been worried about me up here, too, but we're getting there, a little at a time.

[kirizal.livejournal.com]

Progress! Woot!

[jenett]

Woo! Yay for progress, and for movement in the far-most-useful direction.

(I bounce around going "Mris can stand in the corner! Yay!")

[aedifica]

It's wonderful to find out you're making progress! And steady progress is even better. Also, congratulations on standing in the corner.

Hurray!

[buttonlass.livejournal.com]

I'm pretty sure you are the only person I have heard of being so excited to stand in a corner.:)

It's so pleasing when things work isn't it? Even slowly, it's good to know it is working and someday you may not be as pleased with this corner thing.:)

Re: Hurray!

[mrissa.livejournal.com]

Yes, exactly! Someday I can be pleased about walking down a long hall instead! And then after that, the sky's the limit!

[ckd]

Steady progress is a good thing. Making it to Montreal is a good thing. Being in a position to tell us about the progress is a good thing. The progress being slower than you want it to be? Not so much a good thing, but even slow progress is still progress, and therefore beats the heck out of anything less. Monotonic improvement: may it continue, and accelerate.

Thrice daily PT sounds like a fair chunk of work, but I'm sure that your stubbornness diligence is more than sufficient unto the task.

[mrissa.livejournal.com]

Let's go with sufficient. I'm not sure how much more than sufficient it is. But it's sufficient, anyway.

[mamculuna.livejournal.com]

Slow and steady is extremely admirable. I know you have motivation, but still. You are really amazing, to work that hard on something that difficult.

[sethb.livejournal.com]

That's good news, and I think you're doing quite well.

You were at 5% a while ago; you're now doing six times as well, with less than a factor of 4 to go.

Keep up the progress.

[dsgood.livejournal.com]

Good for you!

Keep at it!

[adrian-turtle.livejournal.com]

I'm so glad this is working for you.

[kalmn.livejournal.com]

woo hooo!

[madmanatw.livejournal.com]

Steady improvement is great to hear. Much yay.

[rosefox]

Hooray for steady progress! Hooray for persistent M'rises (M'risses?) who do the terribly unfun self-care things with dogged determination! (You are totally my role model in this right now, by the way.)

[mrissa.livejournal.com]

The preferred plural is M'rissas.

And yes, I was nodding along when you were talking about being more careful than you thought you had to be. I remember that part. If you're like me, you'll figure out how careful you actually do have to be before too long. One can either hope for that or hope it doesn't last that long.

[swan-tower.livejournal.com]

You commenting over on my journal about my medical frustrations was . . . odd, since I know yours make mine look like little molehills. But I, from the land of the god I hope this dilation goes away by tomorrow morning and oh yeah FDA get on with the approving already, give a resounding HUZZAH! for the return of vestibular function -- however slow it may be.

[mrissa.livejournal.com]

It's not a contest, though. We can both be frustrated by what we're dealing with.

[elsue.livejournal.com]

Fabulosity!!!

[kizmet-42.livejournal.com]

You are doing amazing things.

Are you promoted now to Standing in the Corner 102?

[mrissa.livejournal.com]

Yes. I stand in the corner to do various other head movements, because then when I fall, there's a limited number of ways it can go badly awry.

[brithistorian.livejournal.com]

Congratulations on your progress! Yay!

[songwind.livejournal.com]

Yay, that's great news. *careful hugs* I find it hard to imagine that being an implacable Mris was in any way harmful to this.

[brooksmoses]

Monotony is, in some circumstances, a very wonderful thing. Given that this is one of them, I'm quite glad that you have it!

[wshaffer.livejournal.com]

Yay, vestibular function! Keep doing what you're doing!

[suzanne.livejournal.com]

Progress sounds like a good thing, and it iw wonderful that PT is doing what it is supposed to do.

Yay!

suzi

[ellarien]

It's good to hear you're making progress. Here's hoping it continues all the way back to normal, in a reasonable time frame! (The dragon seems to have become, among other things, an icon of fierceness and determination, so it seems appropriate here.)

[hbevert.livejournal.com]

Hooray! Progress! Your perserverence with the program, not knowing at first whether there would be any positive result, is admirable. Keep up the good work!

[miz-hatbox.livejournal.com]

That's wonderful news! Congratulations on being able to stand in the corner!

[mamapduck.livejournal.com]

#4 Totally makes me picture you as Willie Oleson from Little House

[mrissa.livejournal.com]

Better him than his sister.